How old were you
when diagnosed with hemophilia?
38
years old
Are you
currently on factor?
I have
prescription, but no treatment center.
If not on
factor, how do you handle bleeds and such?
I
use herbal medicine
Do you think
advocacy is important for women (in general)?
Absolutely.
So many mom’s don’t even think to consider themselves as patients.
Is there
anything you would change about hemophilia or the community (past, present, and
future)?
The
misconception that women can be carriers with symptom, but go untreated because
they are xx chromosome.
When should
women get diagnosed for hemophilia, even carriers?
Birth.
Just like most of the men.
Why do you think
it is hard for women to get treatment?
Because our hormones
affects our levels.
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